As I was reading the news, I stumbled across a very interesting article pertaining to open source medical records. More specifically, the article was about a man named Salvatore Iaconesi whom was recently diagnosed with brain cancer. The article gives insight into his journey to battle the cancer as well as his unique approach to fight it. Salvatore decided to make his medical records publicly available in a variety of formats, such as plain text documents, excel documents, and audio recordings, which he then made publicly available on his website called The Cure.
Salvatore’s unique approach has lead to thousands of additional case studies of his particular situation as well as good wishes, and a wide range of support/advice from others who were in his situation. I am curious to know what everyone thinks of this idea behind open sourced medical records. Personally, I feel as if it is someone’s personal choice whether they would like their personal medical records to become public. However for those who oppose the idea entirely, I think the support and additional help Salvatore has received has been incredible and frankly I am surprised by the immense outreach he has received from people across the world.
I do question how effective open sourced medical records would be in a broader scale. Perhaps there is a certain interest in Salvatore case but how much help would be given to individuals if there were several thousand public medical records available?
The article also reminded me of the 4th Paradigm article relating to the expansion of a worldwide healthcare system. Although open sourced medical records are slightly different, if this idea took off it would be interesting to see how collaboration could enhance the medical field as a whole. Please comment below to let me know what you think of this unique idea and feel free to watch the TED Talk on the link given below.